You know a picture of a hamster on a wheel and it goes around and around continually til it finally jumps off ...
That's our family.
I have meltdowns often ... I am sure any parent of a child with autism does. And if you don't have a child with autism it is difficult to understand.
Our lives are rollercoasters. Doctor appointments, insurance appointments, home visits, this test, that test, school coordination, sports (if we even want to try), friendships, in home therapies, outside therapies, running from here to there and never really finding a conclusive answer about anything.
We do everything for our son. We try to provide him the best life possible. It annoys me when people say, what do you think his future will be like? Do you think he will go to college? Do you think he will have a job? Do you think he has a learning problem? My answer is Why? Do you honestly think that Nick and I can think that far ahead. Today we worry about Today! Tomorrow we worry about Tomorrow! That's how our lives work. We love him with all our heart. We always will no matter what. I don't really care if he lives with us the rest of his life ... although I think he would prefer to live at Disney World!
My Alpha Xi Delta sisters shared a You Tube video that is really worth watching. Nick and I needed kleenex. For those of you that don't have a child with autism, please watch this. Without speaking it will tell you what our life is like. So, when we don't come to things, leave early, bring our own food or don't participate, please don't judge us. We think of our child first ... and other needs second.
We hope you will continue to support the research of autism and education for families like ours!
No comments:
Post a Comment